Monday, October 6, 2008
Another beginning to another week. So far so good. Simon's sleeping right now and as I look up at the monitor, his heart rate is 98. I'm thinking about how in a few years I will be helping him understand double versus single digit numbers as we're getting into basic math at school. I also think about how just a few minutes ago I drew up 5 different medications that I subsequently inserted into his feeding tube.
It still blows my mind that this is my experience with motherhood. Quite different from what I imagined and I wasn't even spending a lot of time imagining anything because I knew that there's nothing like it.
My sister once said that having Maya was like having your heart walk around outside of your body. Yeah, I feel like that a lot. I love this little person so much I don't quite understand it.
This morning there was a little bump/dip on the roller coaster ride with Simon not having his regular two naps and having a much harder time going to sleep when he was obviously tired. It was hard to suss out whether or not he was just going through a growth spurt moment of fussiness (and maybe not even needing three naps a day anymore) or was there something heart related going on. Not clear just yet, but he's wearing a heart monitor halter for 24 hours so we can monitor that and I'm not worrying too much since he had a great 2+ hour nap this afternoon and as noted before his heart rate is right where it needs to be right now.
It wasn't an easy morning but both Simon and I seem to be recovering quicker from the bumps and dips.
We had a lovely walk with Auntie Dre this evening and even got to wear the same outfit all day for lack of major spit-ups. Nice.
I still don't know what to wear to our Hospital Wedding. I might try on my tux to see if these child bearing hips will fit it but otherwise will need something to at least try and match Jaime in all her splendor.
Simon's tux onesie is too cute. We'll post photos for sure.
Security said that it wouldn't be a problem to have some folks come in as long as we were staying on the 2nd floor so we just need to run it by the Social Worker to get it ok'd. If we were to open it up we need folks to know that
A) We would need to be clear that it's just for the wedding and Shimmy couldn't hang out for very long after the ceremony
B) We would need to ask that if folks did come by that they not touch Simon (as frikkin' adorable as he might be) so as not to overload the little man with germs and/or stimulation.
We would start right at 4pm on Sunday the 19th. How many people would be interested in coming? Email me directly at email@example.com so we know how many cookies to have on hand.
Love to all