Cardiology visits- the least fun. They almost always include a blood draw and usually take upwards of two+ hours
Pediatrician visits- mostly fine and even vaccinations and extra flu shots are over fast.
GI visits- No biggie except for the height measuring which Simon does not like (due to the need to be lain down on his back)
So when our cardiology visit this past Tuesday went so smoothly (minus the very short freak-out during his Echo) I was thinking that the rest of the week would be cake.
Not so, not so.
It started with me, Laura, waking up Thursday morning with what hinted at a sore throat. Simon seemed fine. So in our special co-dependent way all seemed fine until we hit the pediatricians office.
Simon was chillin', checking out the fish tank and a nurse that I've never seen before hands me a "development survey". First off it's the wrong month (she handed me the 18month old child survey) and second.....where do I start......
Simon spent 4 months in the ICU. He is amazing and incredible and surviving and thriving despite being in heart failure, vomiting several times a day, having a tube sticking out of his tummy, and taking 6 different medications that each come with a long list of possible side effects. Really, he's rockin' it given all that.
And, it hurts my heart when I'm checking off that fucking list and almost every answer out of a possible 'yes' 'Sometimes' or "not Yet' is a 'Not Yet'.
He's behind in every category. I think I had maybe one or two Yes's out of the whole dang thing. I know it makes sense and really he is a miracle child AND I gotta tell you, it sucks to have it come at you all at once that your child, that most precious little ball of life, that you are working so tirelessly at not just keeping alive but teaching to savor and delight in each moment (as you are trying to do as well), that this child is not quite where he's "supposed to be".
punim=face in yiddish