The chronicle of a family thriving in the middle of a nightmare. You'll laugh a lot more than you expect. Promise.
Thursday, February 4, 2010
All about me
Simon's fine. Doing great. Looking good (see last entry). Stable as a table.
Mommy's working some shit out.
I'm going away for the weekend with my sister. Just me and my sister. No Simon. Trippy. That's a lot to be thinking and preparing for right?
Naaahh, let's add on an Echo Cardiogram on Friday morning just for fun. No, not for Simon. His regular appointment is coming up on the 8th. No, this one's for me.
I'm fine (I think). This is the Echo that was reccomended by Simon's Cardiologist research studies that show that cardiomyopathy can sometimes be genetic.
----------------------------Wrote a lot more, lost it, done for the night.
Tomorrow
1) Echo for me
2) My mom leaves after a week of being here (so fabulous- no words- huge love)
3) I leave for the weekend- first time away from Simon
Think good thoughts please.
Monday, February 1, 2010
Very Happy Boy
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