Tuesday, October 21, 2008
Weight for it
Jaime is singing to Simon right now and he's doing the very sweet head bob and lean that he's started doing in the last couple of days. I think there's not much sweeter than when he lays his head down on my chest with purpose. Delightful.
Today has been sweet with Simon having easy happy waking times with both me and my Dad, a Roxie walk for me, a nap with Shimmy for my dad, and a gentle going to sleep with Jaime (spoke too soon...whoops) and soon a dinner out with Dianne, Ed, Bernie, Jaime and myself to celebrate the past weekend's festivities and our third wedding anniversary (Oct 22nd) from wedding one. Simon had his medications redosed based on his new weight (6.7 Kilos!!) so he seems to be doing even better than before and it looks like we'll start the Milrinone wean again either tomorrow or Thursday and have it last for about another week. Once he's off of it, we'll take a look at how he's doing symptomatically and tinker some with his doses again. He's still a little more symptomatic than he was before the last weaning but even less so than he was 24 hours ago. Why? Because his meds were based on a 6 kilo weight. My boy is 6.7 kilos!! Have I mentioned what a porker he is now? That's 14.74 pounds! He's not really a porker compared to some but he's hefty, he's got rolls, and a second chin now. I love it.
His BNP won't be back till Thursday but I'm not expecting too much since we've been stressing him some this week. He also had another Echo today but who knows when we'll get that report back. Really it's more about the day to day and that's going swimmingly.
Thank you all for the love, thoughts, and smiles (I hear that yesterday's video is a keeper)