Monday, September 8, 2008
Hold On To Your Hats, People
Sharon, the social worker, came by this morning to check on us. We talked about a lot of different things, and at the end, talked about our conversations re: when if/when we might need to consider palliative care. She said, "I talked to Dr. Rosenfeld this morning and unofficially, he said he doesn't think you guys are at that point. He's the kind of guy who would tell you." We almost peed our pants we were so happy.
Then Dr. Patel who is one of the regular cardiologists, who knows Simon really well, came by this morning. We talked about choosing not to have a transplant and then about what our other options are. He then went on to say that we were no where near needing to think about the end right now. Simon is happy, all his other systems are doing well, and we can just stay on Milrinone for months if that's what it takes. Basically, he still could get better and aside from his heart being a little bigger and his stats being a little worse, he's okay.
There is a lot of room for hope. Bring on the love, bring on the fighter energy, bring on the miracles.
Can I just say for the record, I HATE roller coasters?