Saturday, November 22, 2008

Day 2

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Just a quick update before we fall into bed exhausted...another good day. Lots of smiling, got to ride in his fancy stroller face forward for the first time (had a good nap), still working out all the logistics with the meds and pump, etc.

It's starting to sink in for both of us, but especially for Laura, the magnitude of what this means for us long term. It's really daunting to do all of this ourselves (and soon Laura by herself) without hospital eyes/ears/hands. Plus we're back to being sleep deprived by our precious boy :-)

Hoping the high lasts a bit longer. I think we're starting to come down a little and reality is sinking in a bit. This could be harder than the hospital in some ways. In a lot of ways it's 10 times better, but it's a lot of work instead of a lot of suffering. When things are in crisis, sometimes the rules are lifted, you are able to call in help, you may get a free pass here and there. We're now settling into WORK. We're (hopefully) moving past the crisis phase into the next one which I think may officially be called "Reality Check".

Feeling tired, hopeful, worried, overwhelmed, joyous, apprehensive, triumphant to have made it this far and terrified of what will or won't happen in the next 2 years or so.

Off to bed so we can get some zzzzzzzzzzz's before Shimmy wakes up.

Much love to y'all

3 comments:

Jen said...

Hi - I hadn't read the blog for a while (vacation, computer upgrade, etc.) and it was so great to come back to it and find you all at home. Hang in there! Be good to each other and get as much sleep as you can. And don't forget that the friends and family who were there for you while you were at the hospital are still there for you...even the ones like us whom you've never met. If you need something just ask.

Hugs!

-Jen (fellow MHCer)

Alison said...

So happy to hear that Simon is home. Tears of joy for all of you. Happy Thanksgiving..so much to be thankful for...gobble, gobble

Nicole said...

We have been following your story through the CCF listserve and your blog. We are SO happy your family is at home all together again. We've totally been there with the post hospital fear, the STUFF, the pharmacy explosion...so please email us any time you would like.
Nicole and Mark Altieri (parents of Jackson,2)