We've just learned more than any parent should about heart transplants.
Now we have some very difficult decisions to start to think about.
This is truly horrible.
Simon is so full of life...
We will try to keep people up to date on the day to day but our process re: this decision when/if we have to make it is likely to be private.
Thank you all for all your continuing love, support, energy, joy, hugs, food, dog walks, emails, comments, calls, smiles and thoughts. Thank you for all of it. We couldn't have made it nearly this far without it nor would we be able to go the rest of the way of this journey without you.