Simon hasn't barfed.
Simon wants to play with food all the time.
ALL THE TIME!!
I haven't had to change his or my clothes more than once in a day for over a week.
It's been 2+ years and, whether or not this is rational, I am in a fury that no one (including me) thought to see if dairy was an issue.
Why should we have? His barfing coincided with heart failure and the introduction of several powerful medication that each carry the "possible side effect of nausea and vomiting."
Jaime and I also realized that his barfing also coincided with the supplementing of my breast milk with a fortifier that is cow-milk based.
Simon never barfed before he was symptomatic. Not once. Not even a spit up.
This is so hard to suss out because of all the other intense things that were going on right between 4 and 5 months of age, but goddammit I can't help but feel this intense rage over the possibility that my son (and me too) could have avoided 2 FUCKING YEARS OF VOMITING if we had possibly thought to check him for a dairy intolerance.
It's not an allergy. It doesn't present itself as such but there is no denying that since we have made his food soy based instead of cow milk based, that his barfing has decreased no less than 90%.
90%
That's huge.
And
What a difference in his wanting to play with food. He really is in a place where it's clear that he wants to eat and right now just needs to work on the mechanics of it.
It's intense to watch him. He puts the food in. He plays with it with his tongue. He is enjoying it. He just doesn't know what to do next.
It's like an Argentinian Tango where you know how to get into position to start but you have absolutely no idea how to begin the very complicated next series of steps. (Thank you SYTYCD)
There's salivating, there's biting, there's breathing, there's moving around the mouth, there's all different kinds of chewing, and there's all those things over again in different orders. It's a dangerous dance and the stakes are high. Choking is the ultimate fear.
We've all had those moments. Something goes down the wrong way and there's the split second question of 'can I clear this?'
For Simon that's the overriding feeling. But, we're on our way.
Tomorrow we're off to NYC for a week. Dude's first big plane ride. For sure I'll be wiping down everything but more than that I'm excited to see him charm the pants off everybody he meets.
Another big adventure.
For Simon that's the overriding feeling. But, we're on our way.
Tomorrow we're off to NYC for a week. Dude's first big plane ride. For sure I'll be wiping down everything but more than that I'm excited to see him charm the pants off everybody he meets.
Another big adventure.
Post bath love
The adoration actually goes the other way- Simon looooves his friend David
With Skeeter and her male crew (Raphael, Moses, Shimmy)
That's my boy
Mama and Simon at the Redwoods
"Please just let me enjoy the ride"
Enjoying the Ride
A little wind in my hair
Post Peanutbutter and Spices (100% organic)
6 comments:
Fucking cows.
Milk milk milk.
I completely get your fury. I have experienced a lesser fury myself.
As a teen, 20-something, 30-something, and even 40-something, I had terrible acne. Big welts. Whiteheads. Blackheads. Redheads (well, you know). On my face, back, arms, chest... I spent decades with lotions and potions, visiting dermatologists, trying everything.
Then, in my mid-40s, a trainer at the gym took me off dairy.
Within a week...... Poof! My face cleared up.
All those years of cover-ups and self-hatred.
Oy.
Funny thing. I can drink milk in Europe, and drink RAW milk in the USA, with no acne. What the hell are we feeding our cows?
Really. I guess I should have said, fucking american dairy industry. Cows are nice.
Wow, Laura...what a story. We have food sensitivities too and I wanted to offer an online community that might be super duper helpful for you in sorting out the dairy/food issues. It's called foodlab and it's on yahoogroups. I'm so, so glad Lev is feeling better and wanting to eat. This is a common for kids who finally get offending foods out of their diet.
Hugs,
Jessica (from Rose Scharlin/Berkeley)
Don't beat yourselves up too much, life with our CM kids is an incredibly complicated dance, with the weight of their world upon our shoulders. Raising kids is hard enough and we have all kinds of complex shit on top of it because of their disease. You're doing a great job and hey, it's better to figure it out "eventually" rather than "never". Take care, Courtney Smith
This is a fantastic story Laura. I have gone through it with lots of interest. Well, I was looking for a good mechanic online for my vehicles and I got your blog in my search. Its amazing.
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