The chronicle of a family thriving in the middle of a nightmare. You'll laugh a lot more than you expect. Promise.
He has the most beautiful eyes! And Biff never smiled like that.
What a beautiful kid!I've been slowly reading your posts. A mutual friend (I think Amy) pointed me to your blog. My partner and I had twins at 25 weeks, one of whom is very typically 3 and the other who has a trach, a mic-key g-tube, and cerebral palsy.The spices on the tongue thing is brilliant. Grace has a huge oral aversion, but likes things with intense flavors (for example, prefers cranberry juice droplets to apple juice), so that might be a way to get moving towards taking food by mouth.We do an entire diet of blended foods because formula was disgusting smelling and ridiculously expensive so I know she can tolerate and digest food. If only we could get over the hump of the texture in her mouth and what to do with it.Anyhow, I have loved reading about Simon.
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