Tuesday, September 1, 2009

Terrible Horrible No Good Very Bad Day(s)

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Having a sinus infection does not help.

It's been one of those days (actually we're on day three of one of those days).

Simon has not napped in three days (with a nap on Sunday but then not for three days before that either). I have no idea what's going on for him but it's making me a little nuts that I get no real break during the day (save for the Pious One Abby Pike who can sometimes take Simon and run away from the 'about to lose her shit' Mommy monster). Add on to it a very pukey baby today, morning plans foiled, clothes changes three times before noon, one extra shower (that immediately went to waste) one Dr's visit for Laura, and the ever annoying/sometimes painful sinus infection and we've had a terrible no good very very very bad day. Oh yeah, and Simon has Cardiomyopathy so even when someone wants to come and babysit (thank you for the offer Nola) it's not really an option unless they've been trained in the pump and feeding regiment not to mention the medications. That doesn't even include the extra worrying that his barfing brings on. Are we going back to the ER for IV fluids? Are we going back the ER for something more serious? Why isn't he keeping his food down? Teething? Heart? Other system starting to fail?

I had a good cry right after he barfed on me for the third time in 10 minutes and was clearly not going to take a nap today. then we got a call from our caseworker at the regional Center, the place that provides our OT for us (free of charge). Looks like Arnold has cut their budget significantly so we won't be receiving services from them any more since Simon does in fact have insurance. That just means another co-pay for weekly OT plus he's likely to qualify for physical therapy as well as speech therapy. Three more co-pays AND with our new insurance, med costs almost doubled. I hate this. I hate it.

At least there's an air conditioner now running in our home keeping it cool during these hot hot days (thank you G'paw!!) and we're off to swimming with our dear friends Skeeter and little Moses.

It also helped a little that Chocolate Lucky Charms were on sale at the Drug store where we had to pick up my prescription. It's the little things right?

Somethings gotta change soon. We need to get back to a schedule that includes a nap. What 17 month old baby (with a heart condition) doesn't take a frikkin' nap during the day?! I'd like that back please. Oh yeah, and I'd like Simon to eat. That would be really really nice. And walk. If he started walking too that would be awesome. While we're at it why not just make his heart stronger too. That would be super special. How 'bout it?


Ok then.

I'm out.


Jen said...

Oh crapola sister. I'm coming up with a hug on Friday.

Jen said...

This is from Maya
I love you.
I love Maya.
I love poop.
I love titi.(baby doll you have)
I love Mayo (friend from yoga)
I love you, Maya.
I love you, nothing.